Wednesday, August 24, 2011

To blog, or to sleep?

From the lack of posts recently, you can tell that sleep won.  In fact, sleep has been beating out everything else: cleaning, cooking, etc.  At first, I chalked it up to my ever present insomnia, stress, exhaustion, everything but what the cause most probably is.  I was diagnosed about 15 years ago with pernicious anemia where (especially during high stress periods) my stomach does not make the protein (called the intrinsic factor) that is used to absorb B12.  I haven't had my B 12 levels checked since I've been here, not a smart move on my part.  And then I am reminded of my favorite saying, "There is a reason you put the oxygen mask on yourself first"  which is just a reminder to myself that I have to take care of me before I can take care of anyone else.
That being said, time to catch up!  Spence is currently on his break from Brain Balance.  He goes in for testing next week and then I get the results the Wednesday after Labor Day.  It will be amazing to see his progress.  He has adapted well to school, but he did not like going all day, every day last week.  By Friday, he was having the worst little  meltdowns.  Now, his day starts around 5:45am and he gets home from school on the bus around 3:15.  That is really a long day for a child.  He has been doing much better since I have been checking him out around 12:40, which will allow us to pursue other therapies on Tuesdays and Thursdays (the days he doesn't have Brain Balance)  I am currently trying to get him involved in hippotherapy, without much success.  No, it doesn't involve a hippo, just a horse.  It is different from therapeutic riding in that he is not really taught to handle the horse himself, the movement of the horse is the therapy.
We had to have another IEP meeting to go over a few things.  1-Spence was getting up on the bus. (I think it is because they have him sitting in the back?) so it had to be added to his IEP to put him in a harness for his safety. 2- I signed a paper at the end of last year agreeing to hold Spencer back in Kindergarten, a decision I regretted almost immediately.  3- I wanted to discuss the possibility of checking him out early every day without is counting against his attendance.
I was in Warrior Mom mode- ready to do battle.  There was no battle.  Items 2 & 3 are administrative issues that I discussed with the assistant principal who granted #3 with no problem, but had to talk to the principal about #2.  #1 was granted in the IEP without ANY discussion, it was merely a safety issue.  I'm glad i had Amanda from Brain Balance there because she was able to discuss with the speech therapist and Spencer's teacher some items that Spencer can do.  Spence still has a problem with motivation.  He is not interested in making you happy or proud of him.  If he feels like he wants to do it, he will.  Just where did he get that stubborn streak ;)
Late last week (our IEP meeting was Tuesday), I was told that Spence had been moved up to the first grade and that he had no problem dropping off his folder at his new homeroom.  Yeah!!
And just yesterday, we went swimming.  He was acting like a little tadpole.  He jumped in the 3 feet side and was swimming around.  He even went in the 5 feet and was using his kick board!  Okay, so it is NOT pretty when he swims, but he gets the job done!
I guess that is all for now.  I have a few errands to run before I go to the doctor to get checked out.

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